Friday, May 16, 2008

Since our appointment on Wednesday, I’ve been talking with some moms on a hydrocephalus web forum. One mom said her baby also had very little brain tissue but now his brain is expanding and he’s doing really well. Another lady said her son also had “enlarged” kidneys and that it is pretty common and about 90% of the cases are fine once they are born. So those things were very encouraging and gave us a lot more hope than Dr. Doom! Also, the neurosurgeon said that from the way that the ventricles were enlarged it could be due to a really common cause of hydro which is more environmental than genetic. So we are praying that his case isn’t part of some syndrome or something and praying that his kidney issue will resolve. It has definitely been a roller coaster especially when they find one more thing wrong each time. At this point we can basically just trust God to keep this baby safe and wait and try not to think about worst case scenarios. Thanks for being there for us through all of this and your prayers are greatly appreciated! By the way, I’m due July 16th and we’ll probably try to have him as close to the due date as possible as long as he’s doing ok so that he’ll weigh more and everything will be more mature which will hopefully help him recover faster.

5 comments:

Kris Angarola said...

Scott and Kira,

How does one prepare you for this unexpected prognosis? I wish you didn't have to agonize over the 'what ifs', but you have it exactly right. These experts ... they only have opinions and theories as to what is happening. You have faith in a plan for this beautiful child. And we all have the power of prayer.

I have a friend with two teenage children who have autism. She always says to me, "They teach me so much more about life than I could ever teach them. They've taught me humility and patience."

Please continue to update us on how you're feeling and any news about Zicklet #2. I just want to send you a big hug and put a big ring of light around you, Scotty Potty, Zicklet #1 and #2. I'll pray for you guys every day.

Have you chosen a name for him? I hope so!

Much love,
Kris aka Gonna

The Back's said...

Hang in there Kira and Scott. We will be thinking about you!!
Much love,
Steve, Stephanie and Stephen

Brittany Gard said...

Hey Sra. Zick and Scott,
I am sorry you are having to go through this, but GOD has a plan for us all and he provides us with the power of prayer. I just want to let you know we are all praying for you and Zicklet #2. You must have faith and believe that GOD does have a plan for your little miracle.
We are thinking about you and praying for you.
Much love and prayer,
Brittany and Mike

Ryan and Heather said...

Scott and Kira,

What an overwhelming load of information you guys have received over the last few weeks. Your emotions must be all over the place! Please know that Ryan and I will be praying for you guys and baby #2. You are totally going to make it through this. God already knows the outcome and has your very best interest in mind. Take good care and know you're thought of and cared for!

Anonymous said...

Kira,

My thoughts and prayers are with you! Waiting is the hardest part so I will pray for peace for you and your family during this time! Keep you chin up girlfriend!

Toni Bond