Friday, May 16, 2008
Since our appointment on Wednesday, I’ve been talking with some moms on a hydrocephalus web forum. One mom said her baby also had very little brain tissue but now his brain is expanding and he’s doing really well. Another lady said her son also had “enlarged” kidneys and that it is pretty common and about 90% of the cases are fine once they are born. So those things were very encouraging and gave us a lot more hope than Dr. Doom! Also, the neurosurgeon said that from the way that the ventricles were enlarged it could be due to a really common cause of hydro which is more environmental than genetic. So we are praying that his case isn’t part of some syndrome or something and praying that his kidney issue will resolve. It has definitely been a roller coaster especially when they find one more thing wrong each time. At this point we can basically just trust God to keep this baby safe and wait and try not to think about worst case scenarios. Thanks for being there for us through all of this and your prayers are greatly appreciated! By the way, I’m due July 16th and we’ll probably try to have him as close to the due date as possible as long as he’s doing ok so that he’ll weigh more and everything will be more mature which will hopefully help him recover faster.